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Although in total the number of comments is around 100 so still relatively small. Neil, Charles, and Ewan, all have ME/CFS, but the vaccine was delivered based on their age and not because of the underlying health condition: 4-30pm, The letter said, “Be there. The reply we received from the JCVI directed us to the wording in the ‘Green Book’ which says that GPs should (not can) apply their clinical judgement when it comes to patients who have underlying health conditions that are likely to be exacerbated by Covid infection – see blog published earlier this week. Typical side effects include pain at the injection site, fever, fatigue, headache, muscle pain, chills and diarrhoea. Others are, not surprisingly, reporting a temporary exacerbation of some of their ME/CFS symptoms. Mary, my wife, is my ‘control’. The chances of As people around the world receive COVID-19 vaccines, reports of temporary side effects such as headaches and fevers are rolling in. As shown in the results of clinical trials, more serious or long-lasting side effects are possible. Things have changed in hours. Most report no negative reactions or have experienced some or all of the short-term vaccine side-effects – soreness at the injection site, muscle aches, fatigue, headache and feeling feverish or flu-like – for a few days. Confidence rising that my fears for the vaccine were overdone. A poor night’s sleep. any of these side effects occurring after vaccination differ according to the specific vaccine. Like any vaccine, COVID-19 vaccines can cause side effects, most of which are mild or moderate and go away within a few days on their own. Learn more about vaccines – from how they work and how they’re made to ensuring safety and equitable access – in WHO’s Vaccines Explained series. I don’t see what difference this makes?? However, we don’t yet have any information about possible serious side effects, or how the vaccine might affect people with immune system dysfunction. Reported side effects of COVID-19 vaccines have mostly been mild to moderate and have lasted no longer thana few days. Up at 7.00am and feeling drowsy, as though I have a cold. But we have also received comments from people who have other underlying health conditions – and these are growing as more people receive the vaccine in Group 6. Not enough to completely disable me but I definitely felt off and very dizzy after first getting up in the morning or standing up after exercising. “I reminded them that M.E was indeed classed as a neurological illness (W.H.O ICD 10 G93.3) and that neurological illnesses had been moved to ‘priority’ status by the chief medical officer. … “My GP surgery is now updating all other registered patients of the surgery who are diagnosed with ME/CFS. I got my invite letter yesterday, with the time of early afternoon today (I phoned to check). Estimate 25% down on energy but that’s nothing out of the ordinary for this fluctuating illness. Just click the image to the left or click here for one-off donations or to establish a regular payment. protection. This article is part of a series of explainers on vaccine development and distribution. COVID-19 vaccines protect against the SARS-CoV-2 virus only, so it’s still important to keep yourself healthy and well. It was also the first vaccination since I got ill with the virus that gave me M.E in the summer of ’86.”. “Thanks so much for all you’re doing for the ME community. Feeling just a bit virally and achy this morning. Possibly good news for ME community? Experiencing side effects after getting vaccinated means the vaccine is working and your immune system is responding as it should. The Covid Vaccine Priority Letter Template (V3) “That’s it”, the Doc. My GP confirmed I am in Group 6 with no quibbling! – are being reported. and Tylenol before getting the vaccine, but … to take them after if they get symptoms. That could be because the immune system remembers the virus from the previous infection and has a stronger immediate response to the invader introduced by the vaccine. People who have received the first dose of the AstraZeneca vaccine with no major adverse reaction are strongly encouraged to receive the second dose as planned, including if they are aged under 50 years. No immediate side effects – apart from feeling a bit more sleepy than usual in the evening. Hear that Charles (Shepherd) who beat me to a jab by 3 minutes last Saturday, had his ‘reaction’ to it within the first 24 hours. Thought I’d let you know as the ME Association have been fighting for this to happen.”, “In our area they’re doing over 70’s (which I’m not – I’m 66) & vulnerable people & it would seem that my GP has included me. It’s common to experience some mild-to-moderate side effects when receiving Most people have had to travel to have a vaccination and this could also account for an increase in symptoms especially if they have been housebound by ME/CFS during the pandemic and are not used to the sudden increase in activity. Queued outside for about 10 minutes and spent 5 minutes inside. “Yesterday afternoon I was very pleasantly surprised to have a member of my local surgery knock at my door announcing that they had come to give me my Covid 19 jab. There have been concerns about COVID-19 vaccines making people sick with COVID-19. My friend with ME in the Bristol area ( similar age mid-sixties )also had hers yesterday but she is housebound . magazine! I donned my facemask and gloves and opened a window and left the front door wide open so that a good draught would freshen the air in my cottage. Still a bit more viral than usual but otherwise OK. Oh, and I came away with a lovely little card saying I’ve had a dose of Astra-Zeneca; how thoughtful these GPs are. “No appointment had been made but this was not a problem at all. There are so many mixed messages out there!”, “My doctor just told me I can’t have the vaccine because of when I was diagnosed with M.E. Some people have no side effects. Will I have a bad relapse for weeks, months? I contacted my local GP surgery a week ago to let them know that I was still housebound, and existing on my own and that due to my illness and to shielding I had not seen a soul since Feb 12th, 2020! I also mentioned that I was reluctant to use a taxi because of the risk of exposure. Typical side effects include pain at the injection site, fever, fatigue, headache, muscle pain, chills and diarrhoea. Mine took about 56. Woke at midnight with a sore and heavy ‘jabbed’ arm. However, I would like to say thank you to Dr Shepard for doing the letter which I had ready to send in case I had any problems. Pain at the injection site is the most common side effect of all three coronavirus vaccines authorized in the US. It’s probably wondering what all the fuss is about. The coronavirus vaccines are here, and while some people can't wait to get vaccinated, others are concerned about side effects such as sore arms, fevers and nausea. CCG & Health Board Template Letter (V1) Covid Vaccine! We’re in different parts of the country so not just a local decision. Hoping things will start to improve soon. By morning, in full ‘doze’ mode. Woke up at 3.00am and unable to rest. Really pleased so far. With millions more Americans getting vaccinated every day, some have complained about symptoms they weren't expecting. I didn't relate it to the … vaccinations. Experiencing no side effects doesn’t mean the vaccine is ineffective. Goes to show immune responses can differ. If you have a call package for your landline or mobile phone then calls will normally come out of your inclusive minutes. Mainly these come from people who work in the NHS or social care and other frontline services and others with ME/CFS who are in the over 70 age group. Mild-to-moderate side effects, like a low-grade fever or muscle aches, are normal and not a cause for alarm: they are signs that the body’s immune system is responding to the vaccine, specifically the antigen (a substance that triggers an immune After vaccination, it usually takes a few weeks for the body to build immunity against SARS-CoV-2, the virus that causes COVID-19. Russell Fleming, Content Manager, ME Association. Available every day of the week between these times: 10am - 12noon, 2pm - 4pm and 7pm - 9pm. A few hours later the Stroud appointment was cancelled by text message due to logistical problems! Vaccines are I felt a minor stiffness in both left (stuck) arm & back of neck, but that passed, I now have a minor ache in the upper (stuck) arm. I have had it confirmed by my GP surgery I’m in group 6 for the #CoronavirusVaccine #pwme #MyalgicEncephalomyelitis Thank you @MEAssociation for the template. Some medical professionals have stated that the side effects of alcohol can compound the vaccine's side effects, which may end up causing you a day or two of misery.To manage this, Grossman says, "Good medical advice is to avoid nonsteroidal anti-inflammatory drugs (ibuprofen, naprosyn, etc.) “Thank you for the links and information, and well done to Dr Shepherd for his campaigning.”. The chances of any of these side effects occurring after vaccination differ according to the specific vaccine. It’s a struggle to keep going through the day, so lie down and listen to my audio book, which sends me off to sleep nicely. Dr. Dave Hnida, the medical editor for CBS Denver, recently said he’s heard of a number of side effects related to the COVID-19 vaccine — including dreams of space. About 50 per cent of people who get the AstraZeneca vaccine will experience a mild side effect. Headaches, enlarged glands in my neck, numbness, brain fog have all upped their act. Even a ginger biscuit with a cup of tea, which is a failsafe, fails this time to send me off. We may receive further guidance that changes this, though this is not something we are able to do at this time.” Pretty much what I expected from them!”. This is because the vaccine has not yet had enough time to provide protection. We use cookies to ensure that we give you the best experience on our website. I find him and this whole page very supportive.”, Joint Committee on Vaccination and Immunisation. Looks as though my immune system, whose Sat-Nav is usually on the blink, has met up with the vaccine. We thought you might like to hear how three of our trustees got on when they had their vaccinations. My own GP surgery was extremely helpful, and I was soon able to book in on Saturday afternoon in Stroud instead. Energy levels down 50%. Most of these reactions aren’t serious, and go away quickly. We are a national charity working hard to make the UK a better place for people whose lives have been devastated by an often-misunderstood neurological disease. We don’t expect the chief medical officer for England or the JCVI will make a clear ruling about the inclusion of ME/CFS as a neurological condition that warrants priority treatment with the Covid vaccine. We are beginning to hear from a number of people who have managed to convince their GP or vaccine centre that ME/CFS qualifies them for priority treatment in Group 6. Other Rare Side Effects There have also been some extremely rare side effects reported. “Today I got put down for Group 6 after I emailed them the ME Association Vaccine Leaflet, with a quote from Dr Charles Shepherd regarding the ‘Green Book’ wording. Even dozed off when watching football on TV. “The Covid administrator there told me that he consulted lots of different Drs in the practice. No exacerbation of ME symptoms. You may get a high temperature or feel hot or shivery 1 or 2 days after having your vaccination. GPs should be applying their clinical judgement in this situation and taking your own circumstances into account. Vaccines are designed to give you immunity without the dangers of getting the disease. A midnight tryst is usually romantic but instead of a warm embrace I reach for the paracetamol. By strange coincidence I was vaccinated at almost the same time on Saturday afternoon as Neil! Getting vaccinated is a great relief, but it can come with a form of exhaustion all its own. So here I am, at the surgery. Information for UK recipients on Moderna COVID-19 vaccine. Mary always takes that as a serious sign I am unwell but no, just a tiredness. Now that will be tough. Hnida told CBS Denver that people have vivid dreams when they’re recovering from the novel coronavirus vaccine. Once in Hall 4, we were directed to join 2 queues on either side of the aisle between empty treatment cubicles. It’s important to recognize that some side effects from the Pfizer … A few checks – had I had Covid, felt ill (I presumed the answer was no), was I on warfarin or similar – a minor prick, and I was directed to go and sit in the next half of the aisle for 15 minutes ‘in case’. I got the Pfizer, so may get called back within a month. MEA Template Letter re: Covid Vaccine Priority for people with ME/CFS (Version 3). It may be that you can benefit from having a vaccination delivered at home – although these instances are very rare based on the limited feedback we have received. About five days after first shot I started experiencing dizziness. “I asked if it would be possible to have the Covid-19 vaccine within my home, as I was shielding and because my illness had kept me housebound and single for many years and not well enough to drive. So will take things easy today – as I’ve been advising our members to do…. According to the Centers for Disease Control and Prevention, side effects of the vaccines can include pain, redness and swelling at the injection site, as well as possible fever, headache, tiredness, nausea, chills and muscle pain. Overall things going well. if they experience any unexpected side effects or other health events – such as side effects lasting more than three days. With moderate, as opposed to mild or severe ME, I’m really worried. 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